Working groups Concepts for health and social care research for neurodegenerative diseases

The ANR launches in collaboration with the ERA-NET JPcofuND 2 a rapid action call for leading scientists to establish a number of ambitious, innovative, multi-disciplinary and multi-national expert Working Groups to discuss and align the specific needs of patients and currently available supply by the health and social care system, thereby outlining strategies to improve support for people particularly at moderate, advanced and end of life stages of disease progression.

They should aim at pushing forward the conceptualization of such topics and envisage the provision of best-practice guidelines as well as methodological frameworks of value to the wider research community. The approaches should be integrative (clinical, epidemiological, social, legal) and have a strong focus on patient involvement throughout the planning and conduction of the project. Disability, gender and cultural aspects should be integrated, where possible.

The funding organisations participating to this call that have agreed to provide financial support for Working Groups are listed below:

• Canada, Canadian Institutes of Health Research
• France, French National Research Agency
• Germany, Federal Ministry of Education and Research
• Italy, Ministry of Health (IT-MOH)
• Ireland, Health Research Board (HRB)
• Netherlands, The Netherlands Organisation for Health Research and Dev. (ZonMw)
• Norway, The Research Council of Norway
• Sweden, Swedish Research Council for Health, Working Life and Welfare