“Reinvented Normalities” and chronic condition Philosophical and epidemiological approaches to patients’ perspectives – EpiPhiNoRe

Focusing on chronic disease and multimorbidity, the Epiphinore project aims at generating new knowledge about the content(s) to be given to the aspiration to a "life as it was before", a "normal" or "ordinary" life, as expressed by people who live, temporarily or permanently, in medical institutions or live a medicalised life at home due to a chronic and/or degenerative disease. It uses a methodology that combines a philosophical approach of the “normal” and the “pathological” (Canguilhem, Goldstein) with an innovative epidemiological approach to patients' perspectives, that of the ComPaRe cohort (Community of Patients for Research, www.compare.aphp.fr). It proposes an investigation of the aspiration for a "life as before", a "normal” or “ordinary” life", the meaning and scope of the idea of a "reinvented normality" to participants from ComPaRe cohort. It will analyse its empirical results, their normative implications in terms of care and carepathways, and their philosophical scope.