The French National Research Agency will launch, in partnership with 23 countries, the first European Joint Programme on Rare Diseases for funding “Transnational research projects to accelerate diagnosis and/or explore disease progression and mechanisms of rare diseases”.
The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear benefit for patients. Projects shall involve a group of rare diseases or a single rare disease following the European definition i.e. a disease affecting not more than five in 10.000 persons in the European Community, EC associated states and Canada.
Transnational research proposals must cover at least one of the following areas, which are equal in relevance for this call:
The following approaches and topics are excluded from the scope of this call: (1) Approaches concerning rare infectious diseases or rare cancers; (2) Approaches concerning rare adverse drug events/medical complications in treatments of common diseases; (3) Studies that focus on pre-clinical therapy development and/or validation in in-vitro, cellular or animal models. These will be addressed in future calls; (4) Interventional clinical trials; (5) Rare neurodegenerative diseases which are within the main focus of the Joint Programming Initiative on Neurodegenerative Disease Research (JPND; http://www.neurodegenerationresearch.eu/).
Projects shall involve a group of rare diseases or a single rare disease following the European definition i.e. a disease affecting not more than five in 10.000 persons in the European Community, EC associated states and Canada. Applicants are encouraged to assemble groups of rare diseases based on solid criteria and commonalities if this leverages added value in sharing resources or expertise and has the capacity to elucidate common disease mechanisms and therapeutic targets.
The French National Research Agency will finance solely French partners of selected projects, and for a maximum duration of 3 years.
Submission and evaluation of projects will be carried out in two stages and integrated with other countries. Each country shall fund its national teams according to its own procedures.